Unfortunately, it is not good news. We have been hoping and praying for miraculous healing or things to just stay the same, but that was not what God had in His plans at this time.
#1. The Pulmonary Arteries did continue to swell. remember if they continue to swell too much they will press against the lungs and cause further complications.
#2. His heart function itself has weakened. It was not quite as strong as the last appointment.
#3 My chance of a miscarriage is higher now, which was my worst fear. I was not expecting to hear this. I was not quite as strong this time. I did break down a little.
The girls are in a wedding in MO. this weekend so we are flying out on Wednesday for a week. Our concern is that something may happen while we are gone, but not likely. The Dr. said that Hayden is the most complex case they have had and they are very concerned about the next 4-6 weeks. Our next appointment at CHOP is for July 19th. It will either be 2 hrs or 6 hrs we don't know yet.
Obviously this is not the news we wanted, but we know that God is still in control.
A very good friend of mine shared this verse with me. It really meant a lot. Sometimes we all need a little reminder who is our true ROCK and who keeps us strong.
I Samuel 2:2 There is none holy as the Lord:for there is none beside thee:neither is there any rock like our God.
